Symptoms

Heavy bleeding with menstrual periods (menorrhagia) may be a symptom of a bleeding disorder and can involve:

  • Heavy menstrual periods (e.g., soaking through a tampon and pad around two hourly, or needing to change during the night)
  • Menstrual bleeding for longer than normal (e.g., longer than 8 days)
  • Bleeding with clots bigger than a 50 cent piece in size.

Heavy menstrual bleeding can lead to anaemia (low red blood cell count/low blood iron levels), with symptoms of fatigue, paleness, lack of energy and shortness of breath.

Although these can be symptoms related to haemophilia, they can also be symptoms of a gynaecological disorder, so it is important to consult a gynaecologist.

With diagnosis and appropriate treatment, these bleeding problems can usually be reduced or managed.

If you are a woman or girl with a bleeding disorder, a holistic or comprehensive care approach to your health care can help you to achieve better health and quality of life. Specialist gynaecological care over your lifetime is important to manage any gynaecological issues that occur. These may not be related to haemophilia, but in some cases the bleeding disorder may make the bleeding problems worse.

At times in their life, some symptomatic women may need to have gynaecological surgery or procedures. If this happens, it is important that this is managed in a team, with discussion between the woman, the Haemophilia Centre and the gynaecologist and/or surgeon.

Ideally your medical care team should work together on your health care and should include:

  • A gynaecologist
  • A haematologist specialising in bleeding disorders
  • A GP
  • A paediatrician or obstetrician, if relevant at the time.

Date last reviewed: June 2016