News

HFV Annual General Meeting 2021

Posted: Tuesday, 12 October 2021
Please join us for our VIRTUAL annual general meeting on Wednesday 27th October at 7pm.
Bookings are through www.trybooking.com/BRRGL 
Please click here for the offical Notice of Annual General Meeting 
 

Join our committee!

Posted: Saturday, 2 October 2021
We are looking for new committee members to be part of our wonderful HFV committee!

Registrations are open for the national conference

Posted: Monday, 20 September 2021
THE 20TH AUSTRALIAN CONFERENCE ON HAEMOPHILIA, VWD AND RARE BLEEDING DISORDERS WILL TAKE PLACE THIS YEAR FROM 8-9 OCTOBER 2021 VIRTUALLY.   

Have you checked out the latest HFV magazine?

Posted: Friday, 17 September 2021
Did you get the latest edition of the magazine? 

HFV EVENTS - Update

Posted: Thursday, 5 August 2021
Unfortunately due to Covid the scheduled regional visit program has been postponed. The outer metro visit to Cranbourne may still proceed and will be reassessed closer to the time. 

Please keep checking back on our website for event updates.

Stay safe.

The HFV team
 

Today is World Hepatitis Day

Posted: Wednesday, 28 July 2021
Today is World Hepatitis Day! 
Please check out our Facebook page or Instagram to see tour important messaging around Hepatitis and Liver Health.
Gavin Finkelstein, HFA President, shares his story of living with hep C, treatment, finally a cure and following up his liver health. 'I was cured – it was fantastic. Hep C treatment was the best thing I ever did.'  https://tinyurl.com/Gavin-hepcstory #HepCantWait

#WorldHepatitisDay @worldhepatitisalliance

COVID-19 vaccine FAQs (June 2021)

Posted: Monday, 7 June 2021
With the rollout of the COVID-19 vaccine commencing in Australia, members of the community have asked HFA about how this will impact on people with bleeding disorders.
 
The Australian Haemophilia Centre Directors’ Organisation (AHCDO) has endorsed the joint COVID-19 vaccination guidance for people with bleeding disorders, produced by the World Federation of Hemophilia (WFH), European Association for Haemophilia and Allied Disorders (EAHAD), European Haemophilia Consortium (EHC), and U.S. National Hemophilia Foundation (NHF). This has detailed information and is available on the AHCDO website - CLICK HERE

AHCDO has advised HFA on some answers to some common questions.

These FAQs may be updated as more information becomes known.

COVID-19 vaccine FAQs 

Check out the Winter edition of THE MISSING FACTOR

Posted: Friday, 4 June 2021
We are very lucky to have so many member stories in this edition of The Missing Factor. You can read about how Lenny has adapted to change. Rebecca's had a long family journey with haemophilia and now has now found much happines in her garden sanctuary! We hear from Bailey about what it is like to grow up with moderate haemophilia and Ayub shares his stroy, family history and high hopes for the future.

Latest edition of THE MISSING FACTOR available

Posted: Saturday, 6 March 2021
The latest edition of our magazine The Missing Factor is now available!
Click here to read it now.

MARCH 2021 COMMUNITY CAMP POSTPONED

Posted: Thursday, 11 February 2021
HFV Committee is very disappointed to announce that the Community Camp scheduled for the weekend of March 12-14 has been postponed

The Hotel Quarantine Covid case late last week has illustrated to committee just how dangerous and unpredictable these new Covid strains in particular can be and how quickly DHHS regulations restricting gathering numbers can and need to be in place.  Accordingly, in the interests of keeping our community safe and well and to ensure we can run a full camp program with unrestricted numbers, committee has decided that it would not be appropriate to hold our camp in March as originally hoped and planned.   

We are however excited to announce a new proposed camp date on the weekend November 19-22 at Lake Dewar.  By this time committee anticipate that the Australian vaccine rollout will have been completed and community gatherings will once again be quite safe.  We will look forward to seeing you all then.  And in the meantime, be sure to keep an eye out for the HFV Magazine as well as HFV on Facebook and Instagram for the latest news and announcements about related health issues and upcoming HFV programs and services.

 Thank you for your understanding and please stay safe!
 

VIRTUAL AGM THURS 17th DEC BOOK IN NOW

Posted: Tuesday, 15 December 2020
SUPPORT HFV - BOOK IN NOW!!!

NEW TREATMENT AVAILABLE

Posted: Saturday, 26 September 2020
Wonderful news for our community this morning. This statement below is from HFA.

We are delighted that the Federal Minister for Health, The Hon. Greg Hunt MP, has announced today that emicizumab (Hemlibra®) will be publicly funded as a treatment for Australians with haemophilia.
 
Hemlibra® is a treatment that can reduce or stop bleeding in people with severe or moderate haemophiia A with and without inhibitors.
 
Gavin Finkelstein, HFA President, said, 'this is great news for our community. We are pleased all governments in Australia have agreed to fund their share of the costs of this treatment product for those in our community who need it'.
 
Minister Hunt said in his press release that regular supply of Hemlibra® is expected to be available by December 2020.

Click here to read Minister Hunt's press release
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WFH SUMMIT - Free Registration

Posted: Saturday, 13 June 2020
June 14 to 19, 2020

National Blood Donor Week

Posted: Saturday, 13 June 2020
Celebrating National Blood Donor Week

Getting SOCIAL on Facebook & Instagram

Posted: Monday, 1 June 2020
Keep up to date with our HFV member activities and support through Facebook and Instagram!
Making it easier to stay CONNECTED, SUPPORTED AND EMPOWERED together!
Facebook - Haemophilia Foundation Victoria
Instagram - haemophiliafoundationvictoria

 

HAPPY WORLD HAEMOPHILIA DAY 2020

Posted: Friday, 17 April 2020
Celebrating 30 years of World Haemophilia Day!

COVID-19 Update from HFA - 3rd April 2020

Posted: Friday, 3 April 2020
Important update from HFA including information about treatment and deliveries.

COVID-19 Update from HFA

Posted: Thursday, 19 March 2020
Please click on the link for an update from HFA on Covid-19
https://www.haemophilia.org.au/publications/news/coronavirus-update
 

HFV EVENTS POSTPONED

Posted: Monday, 16 March 2020
HFV member events / peer support have been POSTPONED.

MEN'S RETREAT POSTPONED

Posted: Sunday, 15 March 2020
2020 Men's Retreat POSTPONED.

HFV Membership Engagement Survey

Posted: Monday, 9 September 2019
Please click here to complete this important survey and help HFV to improve our member engagement! All completed surveys go into the draw to win 2 GOLD CLASS MOVIE TICKETS!

Men's Hydrotherapy Program!

Posted: Sunday, 1 September 2019
HFV are looking for expressions of interest from men interesting in attending a hydrotherapy program. Please contact the office on 9555 7595 or [email protected] if you are interested in attending!

2019 Australian Bleeding Disorders Conference

Posted: Thursday, 13 June 2019

The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly, Sydney, 10-12 October 2019.

Our conferences bring together people with bleeding disorders and their families and carers,
as well as health professionals, policy makers and industry. It is a great opportunity to learn,
discuss and plan for the future.

The conference is a great opportunity for people with a bleeding disorder and their families - parents, siblings, partners – to attend, learn more information about new treatments, gene therapy, children and young people, sport and living with a bleeding disorder etc…, make connections and become better empowered about your health.

COMMUNITY FUNDING
To assist, HFA has allocated funding to assist community members with expenses to attend the Conference. Please go to www.haemophilia.org.au/conferences or or call HFA on 1800 807 173.

HFV MEMBERS
Conference registration subsidies will be available to assist HFV member to attend the conference. Please complete the application form or contact the HFV office on
03 9555 7595 /[email protected] 

LIVE WELL FUNDING

Posted: Thursday, 24 January 2019

LIVE WELL FUNDING AVAILABLE

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