Posted: Tuesday, 19 September 2023
Click here to read the Spring 2023 Newsletter.
Spring has arrived! Things have been very busy in the HFV community with the recent conference on haemophilia, VWD & rare bleeding disorders. Don't worry if you missed out as sessions are now available online here.
We are excited to be heading off to Scienceworks this Wednesday at 10:30am. Around six families have booked so far but there are a few places left if you would like to join us. Lunch will be included. Book online here.
October is Bleeding Disorders Awareness month. We have lots of events planned, including our annual Awareness Walk Around Albert Park Lake on 28 October.
We have also opened initial registrations for our 2024 Community Weekend, which will run from 15-17 March at Mill Valley Ranch in Tynong North.
Posted: Tuesday, 27 June 2023
Conference Subsidy for HFV Members Conference Registration Fee Subsidy
Posted: Tuesday, 4 April 2023
Recent activities recap, administrative information, and information on upcoming events.
Posted: Friday, 3 February 2023
The HFV 2022 AGM (4-Feb 2023) has been postponed due to external accounting delays. The event 4-Feb will be run as an all-ages social bowling day, with no AGM business. Register for bowling online here
A new AGM notice will be provided to HFV members soon.
Posted: Wednesday, 21 December 2022
The HFV office will be closed from 21 December 2022. We will reopen 23 January 2023.
Please direct any urgent correspondence to [email protected]
Happy holidays to our wonderful community and best wishes for the new year.
Posted: Monday, 19 December 2022
The 2022 HFV AGM has been re-scheduled to 12pm Saturday 4 February, 2023.
The updated AGM notice can be viewed here
In addition to official AGM business, a community lunch and bowling session will be offered. This is a chance for HFV members to socialise with their families, as well as contribute their thoughts on relevant issues. Registrations required. Book online here
Posted: Monday, 19 December 2022
HFV are excited to announce lots of events on the horizon for early 2023. View our calendar and find event registration links here
Things kick off on Saturday 4 February
with the (rescheduled) 2022 AGM, which includes a community lunch, ten-pin bowling session, and arcade games for kids. Book online here
A young parents morning tea will be held Wednesday 15 February
in Southbank. This is a chance for parents of babies, toddlers and young children with bleeding disorders to catch up in a relaxed environment. Book online here
Everyone's favourite event, the HFV community camp, is coming up on Friday 17 March - Sunday 19 March.
Get excited to catch up with old friends, meet some new people, and participate in some (silly) activities. Great event for individuals, couples, and families of all ages. Bookings open Wednesday 21 December 2022. Book online here
Posted: Thursday, 17 November 2022
Our external accounting audit has been delayed due to unforeseen circumstances. The HFV AGM will be postponed until early 2023 in line with our obligations.
We look forward to seeing you all at community events like the Summer Picnic in the meantime. See our calendar
for upcoming event details.
Posted: Tuesday, 27 September 2022
Check out our upcoming events near you!
Posted: Wednesday, 29 June 2022
Save these upcoming dates in your calendar today!
Posted: Wednesday, 6 April 2022
We are excited to announce three upcoming events for the HFV community. Whether you're looking to reconnect, make some new mates, or just get out of your comfort zone, you're welcome to join us.
Community Games Night - Wednesday 20 April 6:00pm-7:30pm
HFV Men's Retreat - Friday 29 April (evening) - Sunday 1 May (afternoon)
2022 HFV Community Camp - Friday 13 May (evening) - Sunday 15 May (afternoon)
For more information or to register go to https://www.hfv.org.au/get-involved/news/hfv-autumn-2022-events
Posted: Tuesday, 12 October 2021
Posted: Saturday, 2 October 2021
We are looking for new committee members to be part of our wonderful HFV committee!
Posted: Monday, 20 September 2021
THE 20TH AUSTRALIAN CONFERENCE ON HAEMOPHILIA, VWD AND RARE BLEEDING DISORDERS WILL TAKE PLACE THIS YEAR FROM 8-9 OCTOBER 2021 VIRTUALLY.
Posted: Friday, 17 September 2021
Did you get the latest edition of the magazine?
Posted: Thursday, 5 August 2021
Unfortunately due to Covid the scheduled regional visit program has been postponed. The outer metro visit to Cranbourne may still proceed and will be reassessed closer to the time.
Please keep checking back on our website for event updates.
The HFV team
Posted: Wednesday, 28 July 2021
Today is World Hepatitis Day!
Please check out our Facebook
page or Instagram
to see tour important messaging around Hepatitis and Liver Health.
Gavin Finkelstein, HFA President, shares his story of living with hep C, treatment, finally a cure and following up his liver health. 'I was cured – it was fantastic. Hep C treatment was the best thing I ever did.' https://tinyurl.com/Gavin-hepcstory
Posted: Monday, 7 June 2021
With the rollout of the COVID-19 vaccine commencing in Australia, members of the community have asked HFA about how this will impact on people with bleeding disorders.
The Australian Haemophilia Centre Directors’ Organisation (AHCDO) has endorsed the joint COVID-19 vaccination guidance for people with bleeding disorders
, produced by the World Federation of Hemophilia (WFH), European Association for Haemophilia and Allied Disorders (EAHAD), European Haemophilia Consortium (EHC), and U.S. National Hemophilia Foundation (NHF). This has detailed information and is available on the AHCDO website - CLICK HERE
AHCDO has advised HFA on some answers to some common questions.
These FAQs may be updated as more information becomes known.
Posted: Friday, 4 June 2021
We are very lucky to have so many member stories in this edition of The Missing Factor. You can read about how Lenny has adapted to change. Rebecca's had a long family journey with haemophilia and now has now found much happines in her garden sanctuary! We hear from Bailey about what it is like to grow up with moderate haemophilia and Ayub shares his stroy, family history and high hopes for the future.
Posted: Saturday, 6 March 2021
The latest edition of our magazine The Missing Factor is now available!
to read it now.
Posted: Thursday, 11 February 2021
HFV Committee is very disappointed to announce that the Community Camp scheduled for the weekend of March 12-14 has been postponed.
The Hotel Quarantine Covid case late last week has illustrated to committee just how dangerous and unpredictable these new Covid strains in particular can be and how quickly DHHS regulations restricting gathering numbers can and need to be in place. Accordingly, in the interests of keeping our community safe and well and to ensure we can run a full camp program with unrestricted numbers, committee has decided that it would not be appropriate to hold our camp in March as originally hoped and planned.
We are however excited to announce a new proposed camp date on the weekend November 19-22 at Lake Dewar. By this time committee anticipate that the Australian vaccine rollout will have been completed and community gatherings will once again be quite safe. We will look forward to seeing you all then. And in the meantime, be sure to keep an eye out for the HFV Magazine as well as HFV on Facebook and Instagram for the latest news and announcements about related health issues and upcoming HFV programs and services.
Thank you for your understanding and please stay safe!
Posted: Tuesday, 15 December 2020
SUPPORT HFV - BOOK IN NOW!!!
Posted: Saturday, 26 September 2020
Wonderful news for our community this morning. This statement below is from HFA.
We are delighted that the Federal Minister for Health, The Hon. Greg Hunt MP, has announced today that emicizumab (Hemlibra®) will be publicly funded as a treatment for Australians with haemophilia.
Hemlibra® is a treatment that can reduce or stop bleeding in people with severe or moderate haemophiia A with and without inhibitors.
Gavin Finkelstein, HFA President, said, 'this is great news for our community. We are pleased all governments in Australia have agreed to fund their share of the costs of this treatment product for those in our community who need it'.
Minister Hunt said in his press release that regular supply of Hemlibra® is expected to be available by December 2020.
Click here to read Minister Hunt's press release
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Posted: Saturday, 13 June 2020
June 14 to 19, 2020
Posted: Saturday, 13 June 2020
Celebrating National Blood Donor Week
Posted: Monday, 1 June 2020
Posted: Friday, 17 April 2020
Celebrating 30 years of World Haemophilia Day!
Posted: Friday, 3 April 2020
Important update from HFA including information about treatment and deliveries.
Posted: Thursday, 19 March 2020
Posted: Monday, 16 March 2020
HFV member events / peer support have been POSTPONED.
Posted: Sunday, 15 March 2020
2020 Men's Retreat POSTPONED.
Posted: Monday, 9 September 2019
Please click here to complete this important survey and help HFV to improve our member engagement! All completed surveys go into the draw to win 2 GOLD CLASS MOVIE TICKETS!
Posted: Sunday, 1 September 2019
HFV are looking for expressions of interest from men interesting in attending a hydrotherapy program. Please contact the office on 9555 7595 or [email protected] if you are interested in attending!
Posted: Thursday, 13 June 2019
The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly, Sydney, 10-12 October 2019.
Our conferences bring together people with bleeding disorders and their families and carers,
as well as health professionals, policy makers and industry. It is a great opportunity to learn,
discuss and plan for the future.
The conference is a great opportunity for people with a bleeding disorder and their families - parents, siblings, partners – to attend, learn more information about new treatments, gene therapy, children and young people, sport and living with a bleeding disorder etc…, make connections and become better empowered about your health.
To assist, HFA has allocated funding to assist community members with expenses to attend the Conference. Please go to www.haemophilia.org.au/conferences or or call HFA on 1800 807 173.
Conference registration subsidies will be available to assist HFV member to attend the conference. Please complete the application form or contact the HFV office on
03 9555 7595 /[email protected]
Posted: Thursday, 24 January 2019
LIVE WELL FUNDING AVAILABLE