Items tagged 'parents-partners-carers'

Guide to living with VWD

29 October 2024

A guide to living well with von Willebrand disease (VWD) - from diagnosis to treatment, how it is passed on and special issues for females.

VWD fact sheet

29 October 2024

What is von Willebrand disease (VWD) - often called von Willebrand's? This fact sheet covers what causes it, symptoms, diagnosis and treatment.

HFV Spring Magazine 2024

11 September 2024

Bleeding disorders, Connection & support, Events & awareness, Haemophilia, Haemophilia Awareness Week, Leadership & mentoring, Parents & families, Rare bleeding disorders, Von Willebrand disease

Prophylaxis colouring book

29 August 2023

A colouring and puzzle book on haemophilia prophylaxis for a young child.

Overcoming Challenges

19 July 2023

To celebrate Bleeding Disorders Awareness Week HFA launched this digital movie to showcase Overcoming Challenges of a Bleeding Disorder.

Shauna Adams – managing type 3 VWD

19 July 2023

This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today….

VWD – all in the family

19 July 2023

“Lyn” (not her real name) is mother to several children with von Willebrand disorder. She was interviewed by Suzanne O’Callaghan,…

VWD – Down the generations

19 July 2023

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Overcoming challenges – Adam’s story

19 July 2023

Adam was diagnosed with severe haemophilia A when he was only one week old, after developing an intracranial bleed at…

Susie – living with type 1 von Willebrand disorder

19 July 2023

I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this…

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