Skip to content
About Us
Contact Us
Support us
About Us
Contact Us
Support us
Search
Bleeding disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
Women with bleeding disorders
Hepatitis C & HIV
Hepatitis C
HIV
Living with a bleeding disorder
Gene therapy
Youth – Factored In
Getting Older Hub
Travel
Personal Stories
Telling Others
Resources
The Missing Factor Magazine
Publications
Videos, Webinars & Podcasts
Reports
National Haemophilia Journal
Support & Services
Join HFV
Services
Support Groups
Treatment Services
ABDR & MyABDR
State & Territory Foundations
Events & News
News
Events calendar
🤍 Donate Now
About Us
Contact Us
Support Us
Bleeding disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
Women with bleeding disorders
Hepatitis C & HIV
Hepatitis C
HIV
Living with a bleeding disorder
Gene therapy
Youth – Factored In
Getting Older Hub
Travel
Personal Stories
Telling Others
Resources
The Missing Factor Magazine
Publications
Videos, Webinars & Podcasts
Reports
National Haemophilia Journal
Support & Services
Join HFV
Services
Support Groups
Treatment Services
ABDR & MyABDR
State & Territory Foundations
Events & News
News
Events calendar
🤍 Donate Now
About Us
Contact Us
Support Us
Donate
Items tagged 'Rare Disease Day'
News & Stories
Rare Disease Day 2026
26 February 2026
Events & awareness
,
HFA & Foundation news
,
Rare bleeding disorders
Rare Disease Day
28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare diseases
Read more
News & Stories
Growing up with Glanzmann thrombasthenia
28 February 2024
Personal stories
,
Rare bleeding disorders
Glanzmann thrombasthenia
,
Rare Disease Day
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Read more
News & Stories
Living life actively with VWD
19 July 2023
Personal stories
,
Rare bleeding disorders
,
Von Willebrand disease
Living with VWD
,
Rare Disease Day
Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…
Read more