What is MyABDR?
MyABDR is a secure app for smartphones and a web site for people with bleeding disorders or parents/caregivers to record home treatments and bleeds.
It is an internet-based online system that gives you a quick, easy and reliable way to:
- Record treatments and bleeds
- Manage stock of treatment product
- Share the information with your Haemophilia Treatment Centre
- Update your contact and personal details.
MyABDR is secure, private and optional.
For people who prefer a paper-based recording system, a MyABDR treatment diary has been developed alongside as an alternative.
MyABDR links directly to the Australian Bleeding Disorders Registry (ABDR), the system used by Haemophilia Centres for clinical care of their patients.
Getting started
Need information on how to get started?
Visit the MyABDR website – and download Getting Started quick reference guides and other support materials
You can also obtain printed copies from your Haemophilia Centre and from HFA.
How to register
Download the app from Apps store (Apple) or Google Play (android) or go to www.blood.gov.au/myabdr. Register online by creating an account (tip – registering on the web site is easier!). After you register, your Haemophilia Treatment Centre will process your access to MyABDR.
When?
You can register any time.
Before you can use MyABDR, you will need your registration approved by your Haemophilia Treatment Centre. Allow up to 7 days to process your registration.
Need help (from real people)?
Contact MyABDR Support (24 hrs 7 days a week)
T: 13 000 BLOOD (13 000 25663)
E: [email protected]
Or contact Haemophilia Foundation Australia (Mon-Fri)
T: 1800 807 173
E: [email protected]
Who is responsible for MyABDR?
MyABDR is a collaboration between Haemophilia Foundation Australia (HFA), the Australian Haemophilia Centre Directors’ Organisation (AHCDO) and the National Blood Authority (NBA) on behalf of all Australian governments.
Read more about MyABDR