What is MyABDR?
MyABDR is a secure app for smartphones and a web site for people with bleeding disorders or parents/caregivers to record home treatments and bleeds.
It is an internet-based online system that gives you a quick, easy and reliable way to:
- Record treatments and bleeds
- Manage stock of treatment product
- Share the information with your Haemophilia Treatment Centre
- Update your contact and personal details.
MyABDR is secure, private and optional.
For people who prefer a paper-based recording system, a MyABDR treatment diary has been developed alongside as an alternative.
MyABDR links directly to the Australian Bleeding Disorders Registry (ABDR), the system used by Haemophilia Treatment Centres for clinical care of their patients.
Getting started
Need information on how to get started?
Visit the MyABDR tips for users page on the NBA website – and download the Getting Started guide and other tip sheets
You can also obtain printed copies from your Haemophilia Centre and from HFA.
How to register
Download the app from Apps store (Apple) or Google Play (android) or go to MyABDR app and ABDR (NBA website). Register online by creating an account (tip – registering on the web site is easier!). After you register, your Haemophilia Treatment Centre will process your access to MyABDR.
When?
You can register any time.
Before you can use MyABDR, you will need your registration approved by your Haemophilia Treatment Centre. Allow up to 7 days to process your registration.
Security, privacy and consent
For information about MyABDR security, including multi-factor authentication (MFA), visit the My ABDR security and privacy page.
For more information about your privacy and consent to sharing information on the ABDR, visit the Privacy of your information section on the NBA website.
Need help (from real people)?
Contact MyABDR Support at the National Blood Authority (24 hrs 7 days a week)
T: 13 000 BLOOD (13 000 25663)
E: [email protected]
Or contact Haemophilia Foundation Australia (Mon-Fri)
T: 1800 807 173
E: [email protected]
Who is responsible for MyABDR?
MyABDR is a collaboration between Haemophilia Foundation Australia (HFA), the Australian Haemophilia Centre Directors’ Organisation (AHCDO) and the National Blood Authority (NBA) on behalf of all Australian governments.