News & Stories Shauna Adams – managing type 3 VWD 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD This is a transcript of Shauna’s presentation at the 2019 Australian Conference. Hi everyone, thank you all for joining me today…. Read more
News & Stories Susie – living with type 1 von Willebrand disorder 19 July 2023 Personal stories, Von Willebrand disease, Women & girls Living with VWD, Women I keep learning new things in my journey with a bleeding disorder and I’ve come to the opinion that this… Read more
News & Stories Haemophilia – when your daughters bleed too 19 July 2023 Haemophilia, Personal stories, Women & girls Women Glen and Jan, parents of two daughters who carry the gene alteration causing haemophilia and have bleeding symptoms, talked to… Read more
News & Stories Haemophilia – do you catch it? 19 July 2023 Personal stories, Women & girls Women An Australian bleeding disorders community member tells her personal story. I have lived my whole life surrounded by haemophilia. My… Read more
News & Stories Susie ~ Disclosure and telling others 19 July 2023 Employment, Personal stories, Telling others, Von Willebrand disease, Women & girls Women Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her child has VWD type… Read more
News & Stories Sharron – A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia 19 July 2023 Haemophilia, Personal stories, Women & girls Women Sharron’s father Glenn has haemophilia, so she has always known and lived with haemophilia. When she was a child it… Read more
News & Stories Jane’s story – genetic testing for haemophilia 19 July 2023 Haemophilia, Personal stories, Women & girls Women One of the main reasons women choose to have genetic testing for the altered gene for haemophilia is to find… Read more
News & Stories Shauna – sharing her life experience living with a bleeding disorder 19 July 2023 Growing up with a bleeding disorder, Personal stories, Von Willebrand disease, Women & girls, Young people Living with VWD, youth Tell us a little about your bleeding disorder I have severe Type 3 von Willebrand disease. Essentially my blood doesn’t… Read more
News & Stories Haemophilia – all in the family 19 July 2023 Newly diagnosed, Parents & families, Personal stories, Women & girls Newly diagnosed, Women Meet two sisters, Julia and Rebecca. Their father Len has haemophilia. Between the sisters they have four sons, all toddlers – and… Read more
News & Stories Growing up with von Willebrand disease 14 December 2021 Personal stories, Von Willebrand disease, Women & girls, Young people girls, periods, VWD Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD. Read more
